Oh Tuesday

Yesterday I was exhuasted! Granted, I didn't get much sleep the night before; maybe I fell asleep around 1am only to get up 5 hours later at 6. Grrr

But last night, Kyle and I were in bed by 9:30pm -- what old farts are we right?? And I was alseep no later than 10:15. So instead of getting 5 hours of sleep I got 8! woohoo. And I feel more more awake this morning.

Work is going well. Although, every morning at 6am I regret working. I can't imagine what I'll be thinking for that first week of October when I need to go to work an hour earlier! It's funny, I like work, but hate it at the same time.

I know the schedule is good for me, I just wish I could start the schedule at eh 7:30? That would be good. Or even 8. But I'd settle for 7 or 7:30. This 6am deal is just getting a little old.

My sister is doing absolutely amazing! She's already moved into the step-down unit, out of the ICU. This is 5 days here people, 5 days! She was off the vent in a mere 12 hours after surgery!! Can you believe that?? I certainly can't. She's up and walking around. And by walking I mean she's practically doing marathons already. Yesterday she walked for a mile, on 0.5 L of 02. Walking. Amazing. More amazing is that 0.5 L and she wasn't out of breathe! Even chatted the whole way. She is truly one amazing gal. I can't wait till I can go home and we can do things together. Haha I'm going to be the one now going "Hold on, let me catch my breath" and huffing and puffing away. lol

On other, less important, but hilarious news... Goose escaped yesterday! When I came home from work he snuck out the front door into the Apartment complex hallway, and even had a little adventure outside when someone opened the door to get upstairs!

Luckily, our nice neighbor recognized the furry rascal when she was coming home from work and scooped him up outside and knocked on our front door. Oh what a sight to see! Our poor neighbor holding this squirmy little ferret in her hands. The look on my face must have been priceless!

I am so thankful that she saw him and caught him. He was outside for 45 minutes!!! What the heck did you do Goosey for almost a whole hour?? I would have felt awful if we didn't notice, and then when we looked for him at night and couldn't find him. We'd eventually go to bed thinking 'he'll come out eventually' but then he never would have!! I would have felt terrible. So thank you thank you thank you! My lovely kind neighbor. And now I'll be a little more careful of coming in and out of the house. xD

That's it for now.

its a go! AGAIN but serioulsy this time...

As I was waking up this morning, my sister informed me she got ANOTHER call, after being sent home a few hours prior.... so at 6am she was heading up to Boston to see if the 3rd pair of lungs in 3 days was the charm. And it was!

She has been in surgery doing the actual transplant since 130ish. I had such a GREAT feeling about this one. I wore my "I lung you" shirt for extra luck, and it seemed to work. 3 days 3 pairs of lungs, 3 is a lucky number I guess.

Now all we need are some more good thoughts for a speedy recovery.

I am simply overjoyed. She's getting a whole new chance to live again. here here!

It's a go!

She was wheeled into the OR around 9:30 pm. I won't know anything until tomorrow morning, but I hope it goes smooth. I don't even know if I will be able to sleep. I can't believe this is really happening. Love you Julie Christine!

Thanks for keeping her and her donor family in your thoughts. I'm so thankful the donor family is letting my big sis get a second chance, if there ever was a person to deserve it, it's her!

Lungs for Julie...

She just called me and I'm excited, nervous, and a little part of me's scared. She's getting lungs! They called her and told her they were for her. Same blood type, right size? She's number one on the list.... but she said they're high risk lungs, she just couldn't say no.

I hope these are truly her lungs which will let her live again! She wants to do so much, and I want to watch her do it. She'd love law school, she'd be so great at it! And traveling; she, Dad, and I planned on going to France. Plan, not planned, no past tense here.

And now I don't know what to do with my nervous energy. Its really just a waiting game. Wait, wait wait. And then wait some more. Please please please, keep my sister, dear Jpie, in your thoughts today that all goes well, and she has a speedy recovery. It would mean so much to me.

Compliance and Vacation

I understand the concept of compliance. I'm pretty good with it at home, it does indeed, make me feel great. However, when those bags get packed and the meds are meticulously counted out per day (along with a day or two extra -- you never know), I lose it. I simply cannot be on vacation and be anywhere near compliant. It's a little ridiculous. I do believe that is part of the stress when 'vacationing' aka going home.

But not doing my meds adds even more stress, so that when I get home, I don't feel well and I'm down because I was doing so well before we left only to erase all my hard work of compliancy. Don't get me wrong, it's not like I don't TRY to be compliant. I try alright, I try. But somehow things just go undone. I also think its much harder to be compliant on vacation. You're having too much fun to just sit down for 45 minutes to vest. Especially if everyone around you is pulling you in 20 million directions.

that's the other thing about going home. I need to see aproximately 20 million people when I get there. Okay, people, I just drove for 12 stinkin' straight hours, so no I would not like to go out breakfast as soon as we roll up in the driveway. I want to crash on a bed and screw up my sleeping schedule.

Oh, sleep. That's a good one. My whole schedule is out the window. In a 4 day span I only got maybe 18 hours a sleep? This coming from the girl who like to get 10 hours a sleep a night. Grrrr. So everyone expects you to travel all over the place to come visit them. Hello! We're the ones coming up. You get off your lazy bum and come visit me, in my pajamas because I'll be napping the whole day I arrive.

Anywhoo. There are also people I simply do not have time to visit. Who make me visit them regardless. That really gets me. I'm now just complaining. I really only wanted to vent about how I cannot remember to sit down and do pulmozyme while in a different setting, and how amazingly frustrating that is.

My actual visit was nice, considering all the above mentioned nonsense. I didn't get to see one of my old high school friends which was such a bummer because I haven't seen him in literally 4 years and I miss him.

But now after driving 12 hours to arrive yesterday morning, then throwing off the sleep schedule once again by sleeping from 7am to noon, then 330-500 and back to bed by 1130... I'm up at 6 to get right back into the swing of things. I always need a vacation after a vacation. I need a break.

My sister could also use a break. She was escorted to childrens hospital via ambulance equipped with 1 MD 1 RN 2 EMT's. Oh yea, she got the special treatment. But what really threw me off was the part of the message that said "... they stabilized her, and now she's off to hasbro" ... excuse me did you just say they had to stabilize her?Oh dear, that is never good. Along side with throwing up until you pass out, that's never good too. What is good? She is officially double listed at Cleveland Clinic. Lets hope those lungs come soon.

Off to start the day my day with two pint sized trouble makers. At least today its just Thing 1 and Thing 2 and no 3rd child.